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My Hepatitis C & Liver Transplant Video Diary
Monday, 22 February 2010
Hi Folks, Number 2 of my Hep C / Liver Traansplant Video Diary! (http://www.ianquill.blogspot.com) Just thought I'd share my morning routine with you, including the medication I'm taking and my progress so far. Plus my plea to ask you to join the organ donation register, follow the link on my blog-site. Keep well everyone.... Ian
2 comments:
Hi Ian,
Are you eating salt again...YUM YUM>>
Drinking fluids again...YUM>>YUM>>
Sleeping?..YUM>>YUM>>
I'm on the immuno suppressant CELLCEPT which they use here for kidney transplant patients.
It's not on our list of Gov backed drugs so the Hospital (Austin) pays for them.Also on prednisalone plus 75Ml of Karvea (Blood pressure)
Started on Tacralemus went to Phyclosporen then to Cellcept so it can change further down the track depending on how your kidneys react over time.The Cellcept has been great.
I only go to clinic twice a year now which they call the 6 months club.
Lucky boys we two.I'm putting a band together which I thought would never happen.
I wrote this song for the Donor family and all that pulled me through.
http://www.youtube.com/watch?v=i3SRrNSey0g
Great to see you up and about mate.
Enjoy,
Shane.
Hello Ian,
I too am a liver recipient. Mine was given in October 2008 because I was suffering from end stage cirrhosis. I was ill for three years prior to the operation and very ill indeed for the last three months. As I live on Grand Cayman, my procedure was carried out in the US at Broward Hospital, Fort Lauderdale, Florida.
Hearing of your progress brings back many memories. You seem to be making much faster progress than I did. 3½ weeks after my operation I was in the Respiratory Care Unit (a "Step Down" Unit, half way between Intensive Care and the ward), having spent over two weeks in I C first. Then it was three weeks up on the ward and finally six weeks in rehab.
Now, nearly eighteen months later, I am wonderfully well and happy. I take 1 and then 2 prograf alternately every morning (10 or 11 a week). I take one dapsone ever Monday and that's it.
Just before the transplant I was taking over 50 pills a day!
I also have felt the urge to write. I have started a blog that contains stories and episodes from my life. As I came so near to death - one or two weeks - I am putting in writing some of my memories. There's nothing about my medical experiences yet but I am sure that one day they will appear.
I suffered from, "ICU Psychosis" after the op and had many hallucinations but no nightmares. I confidently told my wife one day that one of my nurses was Gwyneth Pa;trow. That surprised her but when Gwynneth appeared, I coughed and nodded at her. After Gwyneth had gone I asked Caroline what she thought. "That's not Her," she said. "She is black but Gwyneth Paltrow is white."
"Not when she's nursing," I snapped.
Keep going. My thoughts are with you.
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