I just met Terry from Cayman (Hepatitis C / Liver Transplant (Hep C) HCV Blog)

Sunday, 21 March 2010

I got an email back from Terry and found his blog so I thought it fair that I should introduce him.

Keep well everyone... Ian

http://ramblingsandstories.blogspot.com/

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A letter from Terry (Hepatitis C / Liver Transplant (Hep C) HCV Blog)





Hi Folks, sorry it's been a while...

I received this email to my web-site a couple of days ago and I thought I'd publish it (thanks Terry) and my reply to it - it says a lot ..... Ian


Hello Ian,

I too am a liver recipient. Mine was given in October 2008 because I was suffering from end stage cirrhosis. I was ill for three years prior to the operation and very ill indeed for the last three months. As I live on Grand Cayman, my procedure was carried out in the US at Broward Hospital, Fort Lauderdale, Florida.

Hearing of your progress brings back many memories. You seem to be making much faster progress than I did. 3½ weeks after my operation I was in the Respiratory Care Unit (a "Step Down" Unit, half way between Intensive Care and the ward), having spent over two weeks in I C first. Then it was three weeks up on the ward and finally six weeks in rehab.

Now, nearly eighteen months later, I am wonderfully well and happy. I take 1 and then 2 prograf alternately every morning (10 or 11 a week). I take one dapsone ever Monday and that's it.

Just before the transplant I was taking over 50 pills a day!

I also have felt the urge to write. I have started a blog that contains stories and episodes from my life. As I came so near to death - one or two weeks - I am putting in writing some of my memories. There's nothing about my medical experiences yet but I am sure that one day they will appear.

I suffered from, "ICU Psychosis" after the op and had many hallucinations but no nightmares. I confidently told my wife one day that one of my nurses was Gwyneth Paltrow. That surprised her but when Gwynneth appeared, I coughed and nodded at her. After Gwyneth had gone I asked Caroline what she thought. "That's not her," she said. "She is black but Gwyneth Paltrow is white."

"Not when she's nursing," I snapped.

Keep going. My thoughts are with you.

Terry.
 
And my reply...
 
Hi Terry,

Thanks for your e-mail, I've got to say it was the most inspiring message I have had in a long time.

As you can probably tell from my blog site, I haven't posted for quite some time. This has been due mainly to the fact that whilst struggling to recover from my transplant, I haven't had either the energy nor the inclination to write.

I always thought that following the transplant that I would go home from hospital and just keep getting better and better. I know now that this is not the case. I find in some cases you have good days and bad days, but more often you have bad days and worse days. That being said I feel physically as though I have progressed comparatively more quickly than most. However psychologically and emotionally I have found my recovery to be a complete roller-coaster.

I know that after only seven weeks or so after my op that my doctors etc are very pleased with my progress however I tend to feel whilst I am alive, I am not really living. So after reading your story of how long it took you to recover I realise that I am being far too impatient. Sometimes hearing stories about you and Gwyneth are all you need to realise it. A good laugh is always the best tonic.

Please write me back and let me know your blog address, I would love to catch up with you and find out how you're getting on and I hope you don't mind but I am publishing this letter on my site as a precursor to my return to writing and hopefully some more video diaries. This could be difficult as my little boy dropped my camera the other day and smashed it to pieces! Nevermind, I've still got my web cam.

Thanks again Terry and please give my love to your very understanding wife and to Gwyneth if you see her again in whatever guise. I read my e-mail to my wife and it made her laugh so much probably because she related to it so much more than I - God knows what she's had to put up with!

Speak to you again soon and keep well.... Ian

ianquill@hotmail.com  or riosbarandgrill@googlemail.com
follow my blog:  http://www.ianquill.blogspot.com/  (IAN QUILL : MY WORLD)
find me on 'facebook.com' or 'tweet me' @ianquill http://www.twitter.com/

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Home Sweet Home! (Hepatitis C / Liver Transplant (Hep C) HCV Blog)

Saturday, 6 March 2010


Hi Guys,

Thanks for the support, sorry I haven't been around for a while but I've been away on a quick break for a week. I got lots to tell you all but no energy to talk, but all is good!

Talk to you all soon!

Keep well everyone.... rio!

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What Is Hepatitis C?

Hepatitis C Information:

Hepatits C is a blood-borne viral disease which can cause liver inflamation, fibrosis, cirrhosis and liver cancer. The Hepatitis C virus (HCV) is spread by blood-to-blood contact with infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide. It is the leading cause of liver Transplant...

Hepatitis C is an inflamation of the liver caused by infection with the Hepatitis C virus is one of the five known hepatitis viruses: A, B, C, D & E. Hepatitis C was previousley known as non-A non-B hepatitis prior to isolation of the virus in 1989.

Symptoms of Acute Hepatitis C:

Acute Hepatitis C refers to first 6 months after infection with HCV. Remarkably, 60% - 70% of people develop no symptoms during the acute phase. In the minority of patients who experience acute phase symptoms, thet are generally mild and non-specific, and rarely lead to specific diagnoses of Hepatitis C. Symptoms of acute hepatitis C include decreased appetite, fatigue, abdominal pain, jaundice, itching and flu-like symptoms.

Symptoms of Chronic Hepatitis C:

Chronic Hepatitis C is defined as infection with the Hepatitis C virus persisting for more than six months. The course of chronic hepatitis C varies considerably from one person to another. Virtually all people infected with HCV have evidence of inflamation on liver biopsy however, the rate of progression of liver scarring (fibrosis) shows significant inter-individual variability.

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